The Heart of My Happiness: A Deep Dive into My Passions
My life is full of unique passions and hobbies that bring joy and fulfilment to each day. For me, those passions include everything from tranquil fishing trips to thrilling sports events. These activities have shaped who I am today. Here’s a glimpse into the adventures that fuel my soul and how they connect with my […]
Living with Noonan Syndrome: My Journey So Far
I was diagnosed with Noonan syndrome (NS) shortly after birth. For my parents, this was an incredibly challenging time, particularly as I was their first daughter, and their plans for the future quickly changed. At the time, specialists informed my parents that there was an 80% chance any future children would be affected by the […]
My Journey with Congenital Heart Disease & Defect (CHD)
I was diagnosed with Congenital Heart Disease (CHD) as a baby, a condition that is part of my diagnosis of Noonan Syndrome (NS). Being so young at the time, I don’t have any memories of the early stages. However, I do know that in 1994, I underwent my first open-heart surgery to close a Ventricular […]
