Welcome to my blog, feel free to follow my journey below.

Hi, I'm Shahn!

Hi, I’m Shahn. I’m 32 years old and based in the UK. I was diagnosed with Noonan Syndrome (NS) at birth, a condition that has shaped my life in many ways. Over the years, I’ve undergone numerous operations and faced many challenges. You can learn more about my experiences in the ‘Living with Noonan Syndrome: My Journey So Far’ and Blog sections of my website.

While Noonan Syndrome has undoubtedly presented challenges, it does not define who I am. I’ve always believed in overcoming obstacles, and I continue to embrace life with resilience and a positive outlook.

This website is a platform for me to share my personal story and raise awareness about Noonan Syndrome. Through my experiences, I hope to shed light on the medical conditions, physical challenges, and other battles that come with living with NS. My goal is to help others understand the condition better and provide support to those who face similar challenges.
Thank you for taking the time to read my story. I hope that, by sharing my journey, I can make a positive impact and encourage greater understanding of Noonan Syndrome.

The Heart of My Happiness: A Deep Dive into My Passions

My life is full of unique passions and hobbies that bring joy and fulfilment to each day. For me, those passions include everything from tranquil fishing trips to thrilling sports events. These activities have shaped who I am today. Here’s a glimpse into the adventures that fuel my soul and how they connect with my love for nature, travel, and family.

Fishing Adventures: From Childhood to Present

Fishing has always been an integral part of my life. Growing up, I spent countless hours fishing with my parents, creating lasting memories by the water’s edge. Now, as an adult, fishing continues to be a cherished hobby that I often enjoy alone or with my supportive partner. Each trip brings new lessons, adventures, and the joy of spending time in nature.

Wanderlust: Exploring Wales and Beyond

In addition to fishing, I have a deep love for exploring the great outdoors. Long walks in my local area or during trips to beautiful parts of the UK—particularly Wales. One of the highlights has been our trips up Mount Snowdon. Although we’ve opted to take the train to the summit (for a little bit of ease!), the real magic happens during the descent, when we can immerse ourselves in the stunning views and local wildlife.

A Passion for Photography: Capturing Life’s Beauty

My love for nature also goes hand-in-hand with my passion for photography. Whether it’s landscapes, animals, or just everyday moments, I find immense joy in capturing the world around me.

Sports Spectating: The Thrill of the Game

When I’m not out in nature or behind the camera, I enjoy watching sports. Speedway, Bangers Racing, and Darts are my go-to spectator sports, whether I’m tuning in from home or heading out to stadiums to feel the excitement in person. There’s something about the energy and thrill of the crowd that makes every event unforgettable.

I’m grateful for the experiences I’ve had and the memories I continue to create, and I look forward to many more adventures in the years to come.

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