In my interactions, I often introduce myself simply as I am in the moment, without any labels or preconceptions. This approach reflects my philosophy that I am not defined by my conditions—I am just Shahn. Despite this, when people learn of my health challenges, particularly my heart condition, it inevitably sparks curiosity and prompts questions.
The most common question I encounter is: “How do you manage so well despite your health issues?” People wonder how I maintain my composure and continue with my daily activities seemingly unaffected.
My response is straightforward: I have adapted to my circumstances from a very young age. Having never experienced what many would consider a “normal, healthy life,” I have learned to cope with daily challenges such as pain, palpitations, and breathlessness as part of my routine. It’s a reality for me, one that isn’t going to change, and I acknowledge that there are many who face even greater hurdles.
I lead a fulfilling life despite my condition. My days are typical—I work, engage in a weekly fitness class, enjoy bike rides, go for walks, and explore new places. In many ways, I consider myself fortunate to live such an active life.
Comments such as “You don’t look like someone who has heart issues” or “You handle your condition so well” are not uncommon. These perceptions stem from a common misconception that illness must be visibly manifest or constantly debilitating. However, I believe in not letting my health define or limit me. Surrendering to my condition would mean letting it win, and that is not an option for me. It’s true, there are moments when the struggle feels overwhelming and I yearn for respite—feelings that anyone with a chronic condition can relate to—and that’s perfectly acceptable.
Each day, I choose resilience and continue to fight, maintaining a positive outlook and a determination to live fully. This mindset doesn’t just help me manage my health; it allows me to thrive despite it.
