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Hi, I'm Shahn!

Hi, I’m Shahn. I’m 32 years old and based in the UK. I was diagnosed with Noonan Syndrome (NS) at birth, a condition that has shaped my life in many ways. Over the years, I’ve undergone numerous operations and faced many challenges. You can learn more about my experiences in the ‘Living with Noonan Syndrome: My Journey So Far’ and Blog sections of my website.

While Noonan Syndrome has undoubtedly presented challenges, it does not define who I am. I’ve always believed in overcoming obstacles, and I continue to embrace life with resilience and a positive outlook.

This website is a platform for me to share my personal story and raise awareness about Noonan Syndrome. Through my experiences, I hope to shed light on the medical conditions, physical challenges, and other battles that come with living with NS. My goal is to help others understand the condition better and provide support to those who face similar challenges.
Thank you for taking the time to read my story. I hope that, by sharing my journey, I can make a positive impact and encourage greater understanding of Noonan Syndrome.

My Battle with Bell’s Palsy

Summer of 2002 was just like any other school day. PE had always been my weak point; I struggled to keep up with my classmates, but this was something I had come to expect due to my history of poor health. As I was filling my water bottle, a friend approached me with a concerned look on their face and asked, “Are you okay? What’s happened to your face?” confused, I replied, “Nothing, everything feels fine.”

I brushed off the comment, finished the day, and headed home. However, as I approached my Mum, she too asked the same question: “Are you okay? What’s happened to your face?” At this point, I started to get a little worried. I hadn’t noticed any difference in my appearance, but the concern in their voices made me realize something was wrong.

Without wasting time, my parents took me to the hospital. After a quick examination by a doctor, I was diagnosed with Bell’s Palsy. At the young age of just 10! I was told it was very rare at such a young age!
Over the following days, the condition worsened. The entire right side of my face became numb and drooped. Simple tasks, like drinking, became difficult, and I had to rely on a straw just to manage. My face had essentially become paralyzed.
It took nearly six months for me to fully recover from Bell’s Palsy. I was eventually given the all clear, but there is the possibility of it recurring.

Since that time, I’ve been fortunate enough not to experience any further episodes of Bell’s Palsy. Life, in that respect, has returned to normal. However, the experience remains a vivid reminder of how fragile our health can be and how quickly things can change.

https://www.nhs.uk/conditions/bells-palsy

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