Welcome to my blog, feel free to follow my journey below.

Hi, I'm Shahn!

Hi, I’m Shahn. I’m 32 years old and based in the UK. I was diagnosed with Noonan Syndrome (NS) at birth, a condition that has shaped my life in many ways. Over the years, I’ve undergone numerous operations and faced many challenges. You can learn more about my experiences in the ‘Living with Noonan Syndrome: My Journey So Far’ and Blog sections of my website.

While Noonan Syndrome has undoubtedly presented challenges, it does not define who I am. I’ve always believed in overcoming obstacles, and I continue to embrace life with resilience and a positive outlook.

This website is a platform for me to share my personal story and raise awareness about Noonan Syndrome. Through my experiences, I hope to shed light on the medical conditions, physical challenges, and other battles that come with living with NS. My goal is to help others understand the condition better and provide support to those who face similar challenges.
Thank you for taking the time to read my story. I hope that, by sharing my journey, I can make a positive impact and encourage greater understanding of Noonan Syndrome.

Bullying and School Life: My Personal Journey

Growing up, I loved nursery and my first school, Reaburn Juniors. It was a warm, welcoming environment where I felt happy and safe. However, the transition to secondary school—Orwell—was more challenging. While the bullying there wasn’t extreme, I did experience teasing from older students. They would laugh at me, make comments, and although it was uncomfortable, I managed to cope.

Moving on to high school was, unfortunately, the most difficult period of my life. The bullying began on day one and didn’t stop until I walked out of those gates for the last time. I genuinely hated school—every day filled me with dread. Still, I pushed through. I put on a brave face and told myself I wouldn’t let them win.

In my first year, I was targeted by older boys. I told myself it would pass once they left, but sadly, that wasn’t the case. The bullying simply continued, often in the form of relentless name-calling. I was mocked for my appearance, even though I didn’t feel I looked any different from anyone else. Clearly, some people thought otherwise.

As the older students left, a new group came up and took their place. The cycle never ended. Every single day brought something new—more comments, more laughter at my expense. At first, I bottled everything up, but eventually, it became too much. I spoke up to my parents and even the headteacher, hoping for support. Unfortunately, the bullying intensified. I dreaded walking between classes, lunch breaks, and the end of the day. There was no escape. I became quieter, constantly looking down, trying not to attract attention.

Midway through my time at school, the bullying shifted—it wasn’t just older boys anymore, but girls in my own year. That hurt more in some ways. Thankfully, I had a best friend who often stood up for me. Her support meant a lot and helped, though it didn’t make everything go away.

I remember once during a PE lesson, some of my jewellery was stolen. I never got it back, and some pieces had deep sentimental value. Experiences like this left lasting emotional scars.

By the time I left school, I was certain I wouldn’t go to college. Why put myself through more years of misery? But during one of my final classes, a teacher pulled me aside and encouraged me to consider it. He told me he believed I had potential and that continuing my education could change my life.

Reluctantly, I started looking at college courses—and that’s when I found Fish Husbandry at Otley College. Even though I didn’t quite meet the entry requirements, the tutors were welcoming and enthusiastic about me joining.

I was nervous starting college, expecting more of the same—but to my surprise, it was a completely different experience. I loved every day. It was more mature, respectful, and everyone got along. Whether it was walking around campus at lunch or waiting for buses, people were friendly and accepting.

I’m so grateful I took that step and enrolled. Going to college helped me regain confidence. While I still have moments of insecurity, especially when it comes to unexpected photos or looking at old ones, I’ve learned to accept and embrace who I am.

As I’ve grown older, I’ve also become more aware of some of the physical traits associated with Noonan syndrome, which I have. In the past, I rarely spoke about it. Most people around me knew I had an “underlying condition,” but I never explained further. Since starting this page, I’ve made a conscious decision to open up more—and I’m glad I have and I hope it encourages others to speak up, too.

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